from the diary-of-a-bone-marrow-transplant dept.
As some in the Squishdot community know, I have a kind of Leukemia called CLL (Chronic Lymphocytic Leukemia).
I am currently undergoing a Bone Marrow Transplant for this condition several thousand miles away from home, and Squishdot has allowed me to keep an online diary of the procedure.
This has turned out to be a wonderful opportunity for everyone. While I live in Vancouver, I am undergoing the bone marrow transplant at Dana Farber Cancer Institute in Boston. Ordinarily, my family and friends would be out of the loop, or kept in only through email. This way they can check the Shquishdot site to see what the latest is, read up on any diary entries they've missed, and review ones they only half remember. We can also include a lot more detail than we would ordinarily because we aren't forcing email on them to read. For those that appreciate the detail it is there, and for the rest, they can skim over it.
Nor are they the only ones using the site. Some of my physicians are keeping up with the latest happenings, even learning how to bookmark pages (Physicians, with exceptions, don't tend to keep up on the cutting edge of computer technology).
There is also an organized CLL mailing list, and the site has been posted to there as well. We have received many good comments and emails (and a few postcards) from people affected by CLL from around the world.
Once my BMT saga is finished I intend to maintain the CLL News site for regular news occurences.
Anyway, I thought I'd let you know (particularly you, Butch) about another Squishdot site that is particularly useful to a select group of people.
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